Tag Archives: mental health

Dreams, obligations and learning to say no.

How many minutes per day are enough to set aside for your dreams when you have a full 25 hours of obligations?

Blue posed this question to me last week. I was between two appointments and missing Tananarive Due’s Octavia E. Butler Celebration of Arts & Activism at Spelman College. (#OctaviaButlerSpelman). I was disappointed, but thanks to social media, I caught some of the proceedings later via live stream.

Blue’s question was a good one. He offered a response: Maybe the secret is minimizing your obligation footprint.

But how?

In the past my approach has been to start with dreams instead of waiting to fit them in later. “Later” isn’t tangible. In fact, by definition, later is always some time other than the present. Starting with dreams means waking before sunrise to tackle priorities. Or it means designing the day with hard breaks for non-negotiables.

In general, obligations take up more space than they’re due. Portrayed as sprawling affairs, they cover time and consciousness they simply don’t deserve. They’re akin to shadow puppets. They play games with light, appearing bigger or smaller in response to our motivation and energy levels.

But let’s be real. Creative scheduling and clarity of purpose do not absolve us of obligations. And despite our best efforts, sometimes they pull rank, and demand healthy portions of our limited attention. But then, what happens to our dreams?

Time is a finite resource, and minimizing your obligation footprint can mean being more efficient, but it also means cutting away that which doesn’t truly move you forward.

yes-238371_640I’ve spent the past couple of days cuddled up with Pearl Cleage’s latest. I’m underlining and starring key points, and alternating between laughing (or gasping) aloud and reading aloud as audience permits.

In the first section of the book she whines, schemes and strives to create time for things that are most important. Eventually, she quits a job that makes her unhappy so she can focus on living her life instead of lamenting about it.

Last May I came across  Learning to Say No, an essay Pearl penned for Essence Magazine in 2004. In it, she said she was a recovering yes-woman:

I realized there was only one way to stop saying yes when I meant no, and that was to understand that I wasn’t just giving up an hour or two here, or a Saturday afternoon there, but the precious, irreplaceable moments of my life. And I decided to stop doing it.

She lights on a specific moment in her life and the circumstances of the essay dovetail with the journal entries detailing her resignation and new departure. She said no to obligations that didn’t serve her, so she could say yes to the priorities that would. We can learn to do that with the big issues of our lives, but it’s also good practice for vetting the energy vampires in our day-to-day. More wisdom from Pearl’s essay:

That night I came up with six questions that I hoped would help me reclaim my life. I call them The Big Six, and I offer them here for one simple reason: They work. Next time someone asks you a question that requires a yes or no answer, ask yourself the following:

    1. What am I being asked to do?
    2. Who is making the request?
    3. Who will benefit from this activity?
    4. What do I want to do?
    5. What will happen if I say no?
    6. What will happen if I say yes?

Wishing you the perfect balance of no, yes and joyful reclamation.

xoxo

TED Talk Tuesday

Although I haven’t seen it in over two years, this TED Talk has been on my mind the past few days. That means it’s time to take another look.

Elizabeth Gilbert is a writer, most famously known for Eat, Pray, Love. She quips early in the talk that it’s quite possible her greatest success is behind her. Even so, she was born to write, and she wants to keep writing.

Creative minds beset with the pressure to create and achieve outward measures of success are at times overwhelmed or downright tortured. Sometimes to the point of being unable to continue with their work. In the darkest cases, they are unable to continue living at all.

Said Elizabeth, “I would prefer to keep doing this work that I love. And so, the question becomes, how?”

Her TED Talk is the story of the answer.

Lupus: Marla’s Story. Part 2.

You are your own best advocate.
Be proactive when dealing with issues regarding your health.
Ask questions and be informed.
~Marla

Lupus is an autoimmune disorder most often diagnosed in people 15-45 years old. Anyone can develop lupus, but women make up 90% of cases.  According to the National Institute of Arthritis and Musculoskeletal and Skin Diseases, lupus is most common in women of African-American, Hispanic, Asian, and Native American descent. In this regard, Marla is representative of the 16,000 Americans who develop lupus annually.

In Part 1 of this brief series, Marla shared the long road from obscure symptoms, to crisis, hospitalization, and diagnosis.  In this installment, she discusses the ways her life has changed as a result and how she is supported on her journey.

Marla at a party in 2010
Marla at a party in 2010

My life has changed quite a bit.  I now take medication every day, which I hate.  Some medication I may have to be on for the rest of my life as a maintenance kind of thing.  Because lupus has no cure, all you can do is treat it and manage it.  Boooo!!! 

I was in denial at first about my diagnosis, but not because I couldn’t accept it.  Everything I would read would list these typical symptoms that I didn’t have.  It wasn’t until November of 2012 that it all became real. 

Out of nowhere, these itchy skin rashes popped up all over my legs and arms.  I had a constant reminder every day that I had lupus and I still have these rashes.  They have left hyperpigmentation that has yet to fade. 

I now have a sensitivity to the sun, and this is a common symptom.  So, I have to avoid the sun as much as possible. This summer, no shorts for me .  I have to wear sunscreen every day (yes, black people need to wear it too).  This has been extremely hard to deal with because I love the sun and now I’m afraid of it.  So now, in addition to the rheumatologist, I also see a dermatologist. (Really tired of all the “ologists”).  I’ve lost a little hair.  I am also experiencing more than usual fatigue, which is also a common symptom. 

Most recently, and I say this with a whisper, I’ve noticed a significant decrease in my libido. I don’t know why, but I’m thinking it’s a combination of the medication as well as the psychological trauma and stress of this journey. I haven’t spoken with my doctor about this yet, but I plan to.  I mean, I’m only 38.

The hardest thing I’ve had to deal with is the not knowing what could happen to my body next.  I didn’t know these rashes would appear, they just did.  Will I have the joint pain that is characteristic with lupus?  As a former professional dancer and I’m being candid here, I think that would devastate me.  I know that I would prevail, but that would be really hard. 

Marla (who made her own costume) as Puss in Boots in 2011
Marla (who made her own costume) as Puss in Boots in 2011

Family and friends have been amazing.  In addition to educating myself, I have had to educate them.  They can be of more help if they know some of what is going on.  Some of my friends have referred me to friends they know who have lupus.  Talking with them has been a tremendous help.

I have felt alone with this disease and still do sometimes.  Lupus manifests itself differently in each person.  For me, right now, it is affecting my skin.  So being able to relate to someone else has been instrumental in the processing of this journey.  

Friends and family members have also turned me on to alternative methods of healing.  I’ve incorporated acupuncture, adopted a gluten-free diet, and tried to reduce the stress (a major cause of having a flare-up).  Therapy – I know that we aren’t supposed to talk about that, but therapy helps.  Having someone not emotionally connected to you provides a different type of support.  I have also entertained the idea of joining a lupus support group.

What do you want people to know or understand about lupus?

I would like people to know that lupus is a quiet disease, kind of a mystery disease.  Most times, no one would know you are living with it.  The symptoms aren’t in your face.  For me, I can cover my arms and legs, so no one would know I have these rashes.  We have all said we are tired, we say it all the time.  But for someone with lupus, the fatigue can be extreme. Those who don’t have it or understand it may not take someone saying they are tired as seriously as they should.  It’s not laziness, it’s fatigue.

There is a quote by Maya Angelou that I love: 

You are not your lupus, and life continues.  You just might have to make some adjustments.  There are going to be bad times, but also good times.  It’s the looking forward to the good times that help you through the bad times. 

I have learned a lot about myself during this journey.  I learned how strong I am and how far I can be pushed and still succeed.  But at the same time, I learned that I didn’t have to be so strong, trying to get through this alone.  I learned how to ask for help.  And, I learned how to truly love myself.


Marla’s favorite lupus-related resources: 

  • Organizations/websites:
  • Android apps:
    • Lupus Connect (discussions, articles)
    • The Lupus App (track prescriptions, doctor’s appointments, symptoms)
    • EPA’s SunWise UV Index (for those with sun sensitivity, tool to know how strong sun is)

Marla’s walk for lupus research is October 19, 2013. Did you miss Part 1 of her story? Read it here.

…but how do you want to feel?

I’m home, after a day of inspiration. And like I’ve been for the past few months, I’m tired. I’m not bone tired or weary, but I’ve just noticed that I’m not as energized as I used to be. There are many very specific reasons for that, but they all boil down to one: change.

One day after work, I did handstands and cartwheels in this grass.
One day after work, I did handstands and cartwheels in this grass.

Over the past several months, I’ve changed a lot and so has my environment. From my zip code to my job responsibilities, to aspects of romantic and platonic relationships.

Personal goals and professional goals have shifted. Exercise habits have changed. Food. The amount of time I spend in the sun or the ways I engage nature. The amount and type of sleep I get. It’s all been one massive ball of change.

Some changes have been on purpose, and others were the result of circumstances. But it still amounts to the same thing: a whole lot is different right now.

It reminds me of the time I was a classroom teacher. At the beginning of every year, I started routines and rituals. I got to know my students, and in some cases new curriculum, new materials, new administrators, and/or new colleagues. All I could do was work my heart out each day and come home and sleep. And sleep.

Sometimes, at the start of school, I’d be asleep well before sunset (not kidding) and I wouldn’t move until daybreak. And that would go on maybe two or three weeks.  Suddenly, I’d get in the swing of things. I’d be on it. Everything would run smoothly at work, and I’d have plenty of energy to plan ahead, or dance, or date, or take classes, or whatever.

But it always took time. And even though it happened every year like clockwork, I had to be gentle with myself, and do what I needed to do to reach a state of equilibrium with my surroundings.

Except for exercise choices, which are primarily seasonal, my recent changes have not been cyclical. They’ve been positive, yet progressive and persistent. One month after another, there’s been a new spin on things. And I haven’t been very good at stopping to reflect. To do the inner work to harmonize fully with all aspects of my life.

Today’s keynote speaker, Akilah Richards, asked us to consider,

…but how do you want to feel?

And I took the time to sit with that this morning. I journaled about it. I sat in the sunshine. I mulled. I want to feel energized and accomplished. Cheerful. Not superficially, or for a few hours in the morning, but I want these feelings to pervade my day and influence my environment.

At the core I want to BE energy and BE productivity and BE good cheer. I’ve felt that way before. I’ve been those things before. I know how to be that person.  I’ll learn how to be those things again, in my new place and under my new conditions.

Clarity is a critical first step.

Mindful action will be the second.

Stay tuned.